Genetics in the News
Genetics in the News
The Life-Saving Secrets in Your Family Tree: The Wall Street Journal profiles a family that uses High Holiday gatherings to trace its history of colon cancer.
Anna Wild Mathews, Wall Street Journal, June 11, 2009
U.S. Senate introduces a bill that will allow carrier screening labs to bill Medicare directly, eliminating hospital involvement and lowering costs for genetic testing, which currently may discourage physicians from recommending the tests.
GenomeWeb Daily News, June 10, 2009
Cancer Patients Challenge the Patenting of a Gene: The American Civil Liberties Union sues Myriad Genetics over the legality of patenting the BRCA 1 and BRCA 2 genes, which are associated with a dramatically increased risk of breast and ovarian cancer. Filmmaker Joanna Rudnick comments on the suit and also supplies a look inside Myriad Labs from her documentary In The Family.
John Schwartz, The New York Times, May 12, 2009
Joanna Rudnick, PBS, June 5, 2009
Comedian Stephen Colbert interviews Steven Pinker, a Harvard psychologist who had his genome sequenced, and they discuss familial dysautonomia, GINA, and why you might choose to learn or not learn information about your own genetic makeup – all in humorous fashion. (Read more about Steven Pinker in the New York Times.)
Colbert Report, Comedy Central, February 11, 2009
You’ve Got Your Mother’s Eyes... But What Else?
Rachel Sacks, Oy!Chicago, January 27, 2009
Jewish genetic disorders: what you don’t know
Rachel Sacks, JUF News, January 23, 2009
How to Deal with a Medical Crisis, the cover story for the January issue of Chicago Magazine, quotes Center Advisory Board members Susan Loeb, JD, and Erin Schneider, LCSW
Graham Meyer, Chicago Magazine, January 2009
Public Shows Strong Support for Genetic Testing
MedPage Today, January 7, 2009
Family Struggles with Ambiguity of Genetic Testing
Deborah Franklin, NPR, December 30, 2008
Experts: Record Family Medical History
2theadvocate.com, December 28, 2008
A Brave New World is a podcast featuring filmmaker Joanna Rudnick and Pulitzer prize winner New York Times journalist Amy Harmon talking to Michele Kort, the senior editor of Ms. Magazine about breast cancer, genetic mutations and how advances in science are leading to difficult questions about genetic diagnosis.
P.O.V, October 31, 2008
Hillel and Women's Health
Hillel News, October 23, 2008
Christina Applegate: Why She Had a Double Mastectomy
The Oprah Winfrey Show, CNN.com, October 14, 2008
Documenting a devastating genetic illness
Jessica Reaves, Chicago Tribune, October 5, 2008
You’re Sick. Now What? Knowledge is Power.
Tara Parker-Pope, New York Times, September 29, 2008
Family matters: A young woman's difficult journey after cancer test
Pauline Dubkin Yearwood, Chicago Jewish News, September 26, 2008
Documenting Risk
Libby Ellis, Oy!Chicago, September 9, 2008
Spotlight on Cancer Genetics features Center Associate Board member Heather Fineman
Judith Graham, Chicago Tribune, September 2, 2008
State's Genetic Nondiscrimination Law Strengthened
CBS 2 Chicago, August 28, 2008
Cancer Test for Women Raises Hope, and Concern
Andrew Pollack, New York Times, August 25, 2008
Documentary Offers New Breast Cancer Treatment: Sensitivity
Olivia Wiznitzer, The Jewish Daily Forward, August 21, 2008
State [DTC] Actions Point to Need for Federal Leadership
Genetics & Public Policy Center, August 13, 2008
Genetic Testing and Personalized Medicine Bill Introduced in the House
July 15, 2008
Genetic-Testing Guidance
Jilian Mincer, Wall Street Journal, July 13, 2008
California warns genetic testing companies to halt DTC services
Genetics & Public Policy Center, June 17, 2008
Father's Day Dystonia is a TV segment on Center Associate Board member Art Kessler's experience with Dystonia, his surgery that changed his life and the steps he took to prevent the disease from being passed down to his son.
Karen Meyer, ABC7 News, June 15, 2008
President Bush Signs Landmark Genetic Nondiscrimination Information Act into Law
Genetic Alliance, May 21, 2008
Redefining Disease, Genes and All
Andrew Pollack, New York Times, May 6, 2008
Focus on the Victor Center for Jewish Genetic Diseases:
Nonprofit Groups Offer Genetic Testing for Jewish Students
The Chronicle of Higher Education, Beckie Supiano, April 25, 2008
The DNA Age: A Pulitzer Prize-winning series of articles by Amy Harmon exploring the impact of new genetic technology on American life.
Nextbook interviews Masha Gessen about her new book Blood Matters: From Inherited Illness to Designer Babies, How the World and I Found Ourselves in the Future of the Gene.
Sara Ivry, Nextbook, April 7, 2008
Marketing of Unproven Tests a Threat to Public Health
Genetics & Public Policy Center, April 4, 2008
"Pretty" Chronicles Drastic Steps to Prevent Cancer
NPR, April 1, 2008
DNA Day 2008 Press Release: Center Helps Illinois Celebrate DNA's Birthday - and Healthier Futures
Real Stories from Cancer Survivors features Center Associate Board member Heather Fineman and her experience with the BRCA1 mutation.
Women's Day, April 15, 2008
Insurance Fears Lead Many to Shun DNA Tests
Amy Harmon, The New York Times, February 24, 2008
Getting Tested: Why College Jews Need to Know Now highlights the Chicago Center for Jewish Genetic Disorders and features the Center‘s genetic counselor and two Genetic Education and Screening Program participants.
Hillel News, February 21, 2008
Men Carry Breast Cancer Genes, Too
Marilynn Marchione, Chicago Tribune, December 15, 2007
Center Genetic Counselor, Michelle Gilats, is quoted in Genetic Diseases
K Kaufman, The Desert Sun, November 28, 2007
In the Name of the Father features Art Kessler, member of the Center's Associate Board and son of Board of Directors Chairman Dennis Kessler.
Jim Ritter, Chicago Sun-Times, November 27, 2007
Chicago Center for Jewish Genetic Disorders to Screen for Additional Diseases
September 5, 2006
Banning Genetic Discrimination
The New England Journal of Medicine, September 1, 2005
Illinois Becomes First Midwest State to Fund Stem Cell Research
Illinois Government Network News, July 12, 2005
Illinois Mandates Insurance Coverage for Breast and Ovarian Cancer Screening
Illinois Department of Public Health, July 7, 2005
Study by Israeli scientists provides insight on DNA code
Medical News Today online, September 10, 2004
Breast Surveillance in BRCA Mutations Carriers
News-Medical.net, September 14, 2004
NHS Urged to Widen Genetic Screening
By James Meikle, Guardian Unlimited, September 3, 2003
Study Results Show Promise for Development of Gene Therapy to Treat Blood Diseases
American Society of Hematology, July 8, 2003
Scientists Crack Gaucher Code
Israel National News online, June 8, 2003
Jerusalem Research Team Hails Cystic Fibrosis Genetic Breakthrough
Israel 21c.org, November 23, 2003
Breast Cancer Patients Who Test Positive For BRCA1 and BRCA2 Mutations Twice As Likely To Choose Mastectomy
Georgetown University Medical Center, April 6, 2004
Special Reports and Interviews
In search of a cure: Jewish genetic diseases still devastate
By Dan Pine, Jewish News Weekly of Northern California, August 27, 2004
DNA: A Revolution at 50
New York Times, Special Edition
The Ultimate Guide to the Human Genome
Nature Publishing Group, Web Focus
News Abstracts
Unless otherwise noted, the following are abstracts from NY Times articles. The full article can be purchased from the NY Times Archives.
The Genome in Black and White (and Gray)
By Robin Marantz Henig, NY Times Magazine, October 10, 2004
When a Doctor Stumbles on a Family Secret
By Barron H. Lerner, M.D, August 16, 2003
Cancer Pioneer Aims to Market a Vaccine
By Andrew Pollack, August 19, 2003
Is Race Real
By Nicholas Kristof, July 11, 2003
2 Scholarly Articles Diverge on Role of Race in Medicine
By Nicholas Wade, March 20, 2003
Diseases Common in Ashkenazim May Be Random
By Nicholas Wade, March 4, 2003
Staying Alive, Staying Human
By Nicholas Kristof, February 11, 2003
Using Genetic Tests, Ashkenazi Jews Vanquish a Disease
By Gina Kolata, February 18, 2003
Race Is Seen as Real Guide to Track Roots of Disease
By Nicholas Wade, July 30, 2002
Concern Among Jews Is Heightened As Scientists Deepen Gene Studies
By Sheryl Gay Stolberg, April 22, 1998
Parents Battle Obscure Disease
By Bonnie Miller Rubin
Chicago Tribune, February 23, 2003
(This article is available for purchase from the Chicago Tribune)
Study Confirms High Risk for Women with BRCA Mutations
By Denise Grady, NY Times, October 24, 2003
A Gentler Type of Colonoscopy Proves Effective
By Gina Kolata, NY Times, December 2, 2003
As Gene Test Menu Grows, Who Gets to Choose?
By Amy Harmon, NY Times, July 21, 2004
Stem Cells: Promise, In Search of Results
By Gina Kolata, NY Times, August 24, 2004
Britain Embraces Embryonic Stem Cell Research
By Elisabeth Rosenthal, NY Times, August 24, 2004
Previous Feature Articles
Ashkenazi Jews and Cancer Risk
New Tests Available for Individuals of Ashkenazi Jewish Descent
Knowledge and Attitudes Toward a Free Education and Ashkenazi Jewish Carrier Testing Program
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