Chicago Center for Jewish Genetics Disorders

Advocacy Links

News & Policy:

Bioethics.net: The American Journal of Bioethics
http://bioethics.net

BioSpace: Latest News on the Pharmaceutical Companies
www.biospace.com

CDC Office of Genomics and Disease Prevention
Genomics Weekly Update - Genetics in the News
www.cdc.gov/genomics/update/current.htm

The Democratic Caucus Committee on Science - US House of Representatives
www.house.gov/science_democrats/welcome.htm

National Academy of Sciences: Science in the Headlines
www.nas.edu/headlines/

National Public Radio Health and Science News
http://news.npr.org/health.html

Reuters Health Information Service
www.reutershealth.com/

Supreme Court of the United States
www.supremecourtus.gov

Thomas: Legislative Information on the Internet
http://thomas.loc.gov/

US Dept. of Health and Human Services
www.hhs.gov/

US Senate
www.senate.gov

US House of Representatives
www.house.gov

White House
www.whitehouse.gov

Advocacy and Policy:

Association of American Medical Colleges
Washington Highlights
www.aamc.org/advocacy/washhigh/start.htm

American Academy of Pediatrics
www.aap.org/
AAP Committee on Genetics
www.aap.org/visit/cmte18.htm

American College of Obstetricians and Gynecologists
www.acog.org/

American Public Health Association
www.apha.org/legislative/

Bio: Biotechnology and Industry Organization
Covers issues and initiatives such as bioethics and biomedical research, intellectual property and patenting, tax and fiscal policies, and regulatory policies. Includes articles on gene patenting, genetic discrimination, and gene therapy.
www.bio.org/

Cancer Legislative Information from the Center for Disease Control (CDC)
www.cdc.gov/cancer/legislat.htm

Council for Responsible Genetics
www.gene-watch.org

Genetic Alliance
The Genetic Issues section is full of tips for lay advocates, legislative issues, backgrounders, resources, and issues related to genetics and rare diseases.
www.geneticalliance.org/

March of Dimes - Advocacy
www.marchofdimes.com/aboutus/855_1979.asp

National Breast Cancer Coalition
Advocacy organization tracks legislative activities, news about breast cancer, and fact sheets. Find out how your state representatives vote on related issues and read about activities and legislation on Capitol Hill. They are currently following Genetic Discrimination and Patients Bill of Rights, as well as many other issues.
www.natlbcc.org/

National Organization for Rare Disorders
www.rarediseases.org

National Partnership for Women and Families
www.nationalpartnership.org/

OLPA - NIH
National Institutes of Health Office of Legislative Policy and Analysis
Includes bill tracking, legislative updates, hearings, and other policy items related to the National Institutes of Health's programs. Bills tracked have included rare diseases, cancer registries and research, access to clinical trials and health care, gene patenting, and genetic discrimination.
http://olpa.od.nih.gov

Washington Fax: A Daily Science Policy News Service
You can apply for a free trial or order a paid subscription, but you can't search the articles without a paid subscription.
www.washingtonfax.com