Nationwide Genetic Counseling and Screening Services

This information is to be used for educational and informational purposes only. This information does not represent advice regarding medical diagnosis or treatment, referrals to health care professionals, endorsements of health care products or any other recommendations. This information should not be relied upon as a substitute for consultation with your doctor or other qualified health care professionals.

To add an organization or institution to this listing, or to update the information provided below, please contact us by email.

Genetic Counseling Organizations
Genetic Screening Programs - State by State Listing

Genetic Counseling Organizations

National Society of Genetic Counselors
http://www.nsgc.org/
Executive Office:

American Board of Genetic Counseling
http://www.faseb.org/genetics/abgc/abgcmenu.htm
American Board of Genetic Counseling

Genetic Screening Programs - State by State Listing

California | Florida | Maryland | Massachusetts | Michigan | Minnesota | New Jersey
New York | Ohio | Oregon | Pennsylvania | Texas

California

Cedars-Sinai Medical Center Tay-Sachs Clinic

This Clinic offers screening for nine diseases (Tay-Sachs, Canavan, Gaucher, Niemann-Pick, Familial Dysautonomia, Cystic Fibrosis, Bloom's Syndrome, Fanconi anemia, and Mucolipidosis IV), featuring a subsidized rate for the Tay-Sachs and Canavan tests. Members of the genetic team also provide annual educational programs to various Jewish Community institutions.

East Bay Perinatal

This center offers genetic counseling and screening for nine diseases (Tay-Sachs, Canavan, Gaucher, Niemann-Pick, Familial Dysautonomia, Cystic Fibrosis, Bloom's Syndrome, Fanconi anemia, and Mucolipidosis IV).

UC Irvine Medical Center

In addition to offering genetic counseling and screening for nine diseases (Tay-Sachs, Canavan, Gaucher, Niemann-Pick, Familial Dysautonomia, Cystic Fibrosis, Bloom's Syndrome, Fanconi anemia, and Mucolipidosis IV), this program performs annual free Tay-Sachs screening and education events in the community.

UC Davis Medical Center - Prenatal Diagnosis

California Tay-Sachs Prevention Program

This laboratory provides services for various testing centers throughout the state of California for Tay-Sachs and Canavan. While there is a fee for hospital-based screenings, college students receive the test at no charge.

UCSF-Stanford Jewish Genetic Disease Center (c/o Cecelia Fairley, MS, Genetic Counselor)

Stanford Medical Center, Medical Genetics H-315, Department of Pediatrics

This program offers bi-monthly information and screening sessions for three diseases (Tay-Sachs, Canavan, and Cystic Fibrosis). Tay-Sachs screening is offered at a subsidized rate.

Encino-Tarzana Regional Health Center

This Center, which is affiliated with the California Tay-Sachs Prevention Program, offers screening for Tay-Sachs and Canavan. Tay-Sachs screening is provided at a discounted rate for all patients, and is offered for free at various community events throughout the year. Several educational events are also organized by the Center.

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Florida

University of Miami Miller School of Medicine, Victor Program

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Maryland

Jewish Family Services Genetic Education & Screening Project

This project consists of community educational events which are followed by screening for five diseases (Tay-Sachs, Canavan, Niemann-Pick, Gaucher, and Cystic Fibrosis). The screening is free of charge, however tax-deductible donations are appreciated.

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Massachusetts

Victor Outreach and Screening Program for Ashkenazi Jewish Genetic Diseases

The Victor Program provides preconception counseling and screening for Tay-Sachs, Canavan, Niemann-Pick A, Gaucher Disease Type I, Familial Dysautonomia, Bloom Syndrome, Fanconi Anemia Type C, Cystic Fibrosis, Glycogen Storage Disease Type Ia, Mucolipidosis IV,and Maple Syrup Urine Disease. For couples found to be at increased risk, reproductive counseling, prenatal diagnosis and treatment will be coordinated. The program also provides education in the community and at college and graduate school campuses.

Boston University School of Medicine - Center for Human Genetics

This Center offers genetic counseling and screening for eight diseases (Tay-Sachs, Canavan, Niemann-Pick, Gaucher, Bloom's Syndrome, Fanconi anemia, Familial Dysautonomia, and Cystic Fibrosis).

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Michigan

Henry Ford Hospital, Department of Medical Genetics

This genetics clinic offers genetic counseling and screening for nine diseases (Cystic Fibrosis, Tay-Sachs, Familial Dysautonomia, Canavan, Fanconi anemia, Niemann-Pick, Mucolipidosis IV, Bloom's Syndrome, and Glycogen storage disease type 1a). Additionally, the department provides educational programs to the community.

Wayne State University, Reproductive Genetics Department

This genetics clinic offers genetic counseling and screening for nine diseases (Cystic Fibrosis, Tay-Sachs, Familial Dysautonomia, Canavan, Fanconi anemia, Niemann-Pick, Mucolipidosis IV, Bloom's Syndrome, and Glycogen storage disease type 1a).

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Minnesota

Mayo Clinic Medical Genetics

Genetic counseling and screening are generally offered for four diseases (Tay-Sachs, Canavan, Gaucher, and Cystic Fibrosis), with other tests available upon request.

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New Jersey

Genetics Associates of New Jersey

The office's Jewish Genetic Disease Program offers educational sessions and screening, as well as genetic counseling, treatment, and other resources.

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New York

Albert Einstein College of Medicine, Montefiore Medical Center, Division of Reproductive Genetics

Genetic counseling and screening are available for nine diseases (Tay-Sachs, Niemann-Pick, Fanconi anemia, Bloom's Syndrome, Gaucher, Cystic Fibrosis, Canavan, Familial Dysautonomia, and Mucolipidosis IV).

Dor Yeshorim

Dor Yeshorim is an anonymous Jewish Genetic Disease carrier screening program that primarily serves the Orthodox Community. Participants are not given the results of their screening; instead, they receive an identification number. The screening is offered at a heavily subsidized rate. When a couple is considering marriage, both partners submit their identification numbers and are informed whether they are compatible or not. A couple is only considered incompatible if they are both carriers of the same disease.

Mount Sinai School of Medicine Center for Jewish Genetic Diseases

A team of genetic counselors and geneticists provide community education and screening for nine diseases (Tay-Sachs, Canavan, Gaucher, Niemann-Pick, Familial Dysautonomia, Cystic Fibrosis, Bloom's Syndrome, Fanconi anemia, and Mucolipidosis IV). The Center has a genetics laboratory on the premises, and sponsors a variety of research initiatives in this field.

Jewish Genetic Screening Program, New York Methodist Hospital

This program provides genetic counseling and screening for nine diseases (Tay-Sachs, Canavan, Gaucher, Niemann-Pick, Familial Dysautonomia, Cystic Fibrosis, Bloom's Syndrome, Fanconi anemia, and Mucolipidosis IV).

NYU School of Medicine, Human Genetics Program

This Program offers genetic counseling and screening for nine diseases (Tay-Sachs, Niemann-Pick, Fanconi anemia, Bloom's Syndrome, Gaucher, Cystic Fibrosis, Canavan, Familial Dysautonomia, and Mucolipidosis IV).

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Ohio

Cincinnati Children's Hospital Medical Center, Division of Human Genetics

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Oregon

Oregon Health Sciences University

Genetic counseling and screening are available for eight diseases (Tay-Sachs, Canavan, Niemann-Pick, Gaucher, Bloom's Syndrome, Fanconi anemia, Familial Dysautonomia, and Cystic Fibrosis).

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Pennsylvania

Victor Center for Jewish Genetic Diseases/Kaiserman Jewish Genetic Disease Screening Program Albert Einstein Medical Center

This program provides genetic counseling and screening to healthy individuals at risk for being asymptomatic carriers. Screening is provided at a discounted rate to all community members; students and newlywed couples receive free screening for eight diseases (Tay-Sachs, Canavan, Niemann-Pick, Gaucher, Bloom's Syndrome, Fanconi anemia, Familial Dysautonomia, and Cystic Fibrosis). The program is also heavily involved in community outreach and education, offering lectures, materials, and other resources to Rabbis, physicians, and community members.

Thomas Jefferson University, Tay-Sachs Prevention Program

This lab provides genetic screening for seven diseases (Tay-Sachs, Canavan, Gaucher, Niemann-Pick, Bloom's Syndrome, Fanconi anemia, and Cystic Fibrosis). Free Tay-Sachs and Canavan screening are available during the month of May in conjunction with the National Tay-Sachs and Allied Diseases Association of Delaware Valley (www.tay-sachs.org).

University of Pittsburgh/UPMC Genetics Education and Counseling Program - Ashkenazi Jewish Outreach; Center for the Study and Treatment of Jewish Genetic Diseases

The mission of the Education and Counseling Program is to raise awareness among community members and professionals about Ashkenazi Jewish Genetic Diseases. In order to achieve this goal the Program provides brochures and educational workshops to Jewish communities throughout Western Pennsylvania, as well as referral information. The Center for the Study and Treatment of Jewish Genetic Diseases provides affordable carrier testing for five diseases (Gaucher, Tay-Sachs, Canavan, Fanconi anemia, and Cystic Fibrosis) and also offers genetic counseling, treatment, and management for those affected with or at risk for these conditions.

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Texas

Baylor Prenatal Genetics Center

This Center offers genetic counseling and screening for nine diseases (Tay-Sachs, Niemann-Pick, Fanconi anemia, Bloom's Syndrome, Gaucher, Cystic Fibrosis, Canavan, Familial Dysautonomia, and Mucolipidosis IV).

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Page last updated: 09.22.04

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