Your Body, Your Future:
A Guide to Women's Health in
the Age of Genetics and Technology
Online Resources- Genetic Disorders and Diseases
Canavan Foundation Online
www.canavanfoundation.org
Canavan Research Illinois
www.canavanresearch.org
Chicago Center for Jewish Genetic Disorders
www.jewishgeneticscenter.org
Cooley's Anemia Foundation, Inc.
www.thalassemia.org
CysticFibrosis.com
www.cysticfibrosis.com
Dystonia Medical Research Foundation
www.dystonia-foundation.org
Dysautonomia Foundation, Inc.
www.familialdysautonomia.org
Fanconi Anemia Research Fund, Inc.
www.fanconi.org
Late Onset Tay-Sachs Foundation
www.lotsf.org
Mucolipidosis IV Foundation
www.ml4.org
Center for Jewish Genetic Diseases -
Mount Sinai School of Medicine
www.mssm.edu/jewish_genetics
National Gaucher Foundation
www.gaucherdisease.org
National MPS Society, Inc.
www.mpssociety.org
National Niemann-Pick Foundation, Inc.
www.nnpdf.org
Sickle Cell Information Center
www.scinfo.org/
National Tay-Sachs and Allied Diseases Association
www.ntsad.org
United Leukodystrophy Foundation
www.ulf.org
Association for Glycogen Storage Disease
www.agsdus.org
Hemochromatosis Foundation
www.hemochromatosis.org
Alpha 1-Antitrypsin
www.alpha1.org/
National Coalition for PKU and Allied Disorders
www.pku-allieddisorders.org
Hereditary Hemochromatosis Disease Profile
www.ornl.gov/sci/techresources/
Human_Genme/posters/chromosome/hh.shtml
Family Support Services
Alliance of Genetic Support Groups
www.geneticalliance.org
Family Village
www.familyvillage.wisc.edu
March of Dimes Birth Defects Foundation
www.modimes.org
Med Help International
www.medhelp.org
MUMS National Parent-to-Parent Network
www.netnet.net/mums/
National Organization for Rare Disorders, Inc. (NORD)
www.rarediseases.org/
This page was updated on 09/23/04
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