News & Policy:
Bioethics.net: The American Journal of Bioethics
BioSpace: Latest News on the Pharmaceutical Companies
CDC Office of Genomics and Disease Prevention
Genomics Weekly Update – Genetics in the News
The Democratic Caucus Committee on Science – US House of Representatives
National Academy of Sciences: Science in the Headlines
National Public Radio Health and Science News
Reuters Health Information Service
Supreme Court of the United States
Thomas: Legislative Information on the Internet
US Dept. of Health and Human Services
US House of Representatives
Advocacy and Policy:
Association of American Medical Colleges
American College of Obstetricians and Gynecologists
American Public Health Association
Bio: Biotechnology and Industry Organization
Covers issues and initiatives such as bioethics and biomedical research, intellectual property and patenting, tax and fiscal policies, and regulatory policies. Includes articles on gene patenting, genetic discrimination, and gene therapy.
Cancer Legislative Information from the Center for Disease Control (CDC)
Council for Responsible Genetics
The Genetic Issues section is full of tips for lay advocates, legislative issues, backgrounders, resources, and issues related to genetics and rare diseases.
March of Dimes – Advocacy
National Breast Cancer Coalition
Advocacy organization tracks legislative activities, news about breast cancer, and fact sheets. Find out how your state representatives vote on related issues and read about activities and legislation on Capitol Hill. They are currently following Genetic Discrimination and Patients Bill of Rights, as well as many other issues.
National Organization for Rare Disorders
National Partnership for Women and Families
OLPA – NIH
National Institutes of Health Office of Legislative Policy and Analysis
Includes bill tracking, legislative updates, hearings, and other policy items related to the National Institutes of Health’s programs. Bills tracked have included rare diseases, cancer registries and research, access to clinical trials and health care, gene patenting, and genetic discrimination.
Washington Fax: A Daily Science Policy News Service
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