Jewish Genetic Disorders

Canavan:
Canavan Foundation
http://www.canavanfoundation.org/

Canavan Research Illinois
http://www.canavanresearch.org/

Canavan Research Foundation
www.canavan.org

United Leukodystrophy Foundation
Contains information on Canavan Disease
http://www.ulf.org/

Dystonia:
Dystonia Medical Research Foundation
http://www.dystonia-foundation.org/

The Bachman-Strauss Dystonia & Parkinsons Foundation, Inc.
http://www.dystonia-parkinsons.org

Care 4 Dystonia
http://www.care4dystonia.org/

Dysautonomia:
Dysautonomia Foundation
www.familialdysautonomia.org

FD Village/FD Hope
http://www.fdvillage.org/

National Dysautonomia Research Foundation
www.ndrf.org

Fanconi Anemia:
Fanconi Anemia Research Fund, Inc.
www.fanconi.org

Fanconi Anemia UK
http://www.fanconi-anaemia.co.uk/

Fanconi Canada
http://fanconicanada.org/

Hope for Henry
http://www.hsg.org/

Gaucher Disease:
National Gaucher Foundation
www.gaucherdisease.org

Gauchers Association UK
http://www.gaucher.org.uk

Gaucherwest.com:
Tower Hematology Oncology – Comprehensive Gaucher Treatment Center
http://www.gaucherwest.com

Mount Sinai Comprehensive Gaucher Disease Treatment Center
http://www.mssm.edu/gaucher/

Researching Disease: Dr. Brady & Gaucher Disease
How medical researchers study diseases, by answering three basic questions. Focuses on NINDS and their work with Gaucher disease.
http://www.nih.gov/od/museum/exhibits/gaucher/

Mucolipidosis IV:
ML4 Foundation
www.ml4.org

National MPS Society
Information on mucopolysaccharidoses (MPS) and mucolipidoses (ML).
http://www.mpssociety.org/

Neimann-Pick Disease:
National Niemann-Pick Foundation
www.nnpdf.org

Tay-Sachs Disease
National Tay-Sachs and Allied Disease Association
www.ntsad.org

Tay-Sachs and Allied Diseases Delaware Valley (Includes Canavan)
http://www.tay-sachs.org

Late-Onset Tay-Sachs Foundation
www.lotsf.org

Sites for Genetics Information and Disorder Information:
123 Genomics
An information clearinghouse on genetics and disorders.
http://123genomics.homestead.com/files/home.html

Family Village
“A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.” Includes most of the Jewish Genetic Disorders.”
http://www.familyvillage.wisc.edu

Genetic Alliance
For people living with genetic diseases and their families. Disease information, help line and support groups, ethical, legal, and social issues.
http://www.geneticalliance.org/

Genetics and Rare Conditions Site-University of Kansas Medical Center
An information clearinghouse.
http://www.kumc.edu/gec/support/

Jewish Genetic Diseases at University of Pittsburgh
http://www.pitt.edu/~geneorb/

Jewish Genetic Diseases on Mazornet.com
www.mazornet.com/genetics

Lysosomal Diseases New Zealand
Tay-Sachs, Canavan disease, MLIV, and Gaucher disease are all Lysosomal diseases.
http://www.ldnz.org.nz/

Med Help International
Find conditions and disorders using their search feature. Each condition is subdivided into topics.
http://www.medhelp.org/

Mums National Parent-to-Parent Network
Sets up support groups for parents of disabled children.
http://www.netnet.net/mums/

National Foundation for Jewish Genetic Disorders
http://www.nfjgd.org

National Institute of Health-Office of Rare Diseases
http://rarediseases.info.nih.gov

National Organization for Rare Diseases
http://www.rarediseases.org/

This page last updated on January 10, 2003.