Jewish Genetic Disorders

Canavan Foundation

Canavan Research Illinois

Canavan Research Foundation

United Leukodystrophy Foundation
Contains information on Canavan Disease

Dystonia Medical Research Foundation

The Bachman-Strauss Dystonia & Parkinsons Foundation, Inc.

Care 4 Dystonia

Dysautonomia Foundation

FD Village/FD Hope

National Dysautonomia Research Foundation

Fanconi Anemia:
Fanconi Anemia Research Fund, Inc.

Fanconi Anemia UK

Fanconi Canada

Hope for Henry

Gaucher Disease:
National Gaucher Foundation

Gauchers Association UK
Tower Hematology Oncology – Comprehensive Gaucher Treatment Center

Mount Sinai Comprehensive Gaucher Disease Treatment Center

Researching Disease: Dr. Brady & Gaucher Disease
How medical researchers study diseases, by answering three basic questions. Focuses on NINDS and their work with Gaucher disease.

Mucolipidosis IV:
ML4 Foundation

National MPS Society
Information on mucopolysaccharidoses (MPS) and mucolipidoses (ML).

Neimann-Pick Disease:
National Niemann-Pick Foundation

Tay-Sachs Disease
National Tay-Sachs and Allied Disease Association

Tay-Sachs and Allied Diseases Delaware Valley (Includes Canavan)

Late-Onset Tay-Sachs Foundation

Sites for Genetics Information and Disorder Information:
123 Genomics
An information clearinghouse on genetics and disorders.

Family Village
“A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.” Includes most of the Jewish Genetic Disorders.”

Genetic Alliance
For people living with genetic diseases and their families. Disease information, help line and support groups, ethical, legal, and social issues.

Genetics and Rare Conditions Site-University of Kansas Medical Center
An information clearinghouse.

Jewish Genetic Diseases at University of Pittsburgh

Jewish Genetic Diseases on

Lysosomal Diseases New Zealand
Tay-Sachs, Canavan disease, MLIV, and Gaucher disease are all Lysosomal diseases.

Med Help International
Find conditions and disorders using their search feature. Each condition is subdivided into topics.

Mums National Parent-to-Parent Network
Sets up support groups for parents of disabled children.

National Foundation for Jewish Genetic Disorders

National Institute of Health-Office of Rare Diseases

National Organization for Rare Diseases

This page last updated on January 10, 2003.