The following resources are State of Illinois agencies and organizations and are designed for individuals in need of assistance. This list of Illinois State Resources was adapted from the National Information Center for Children and Youth with Disabilities, P.O. Box 1492, Washington, DC 20013, 1-800-695-0285, www.nichcy.org. The offices listed on this state sheet are primarily state-level offices. Even if an office is not close to your home, they can usually put you in touch with resources in your community, as well as provide you with information and assistance about disability issues in your state.
For more information, please contact the appropriate organizations listed below. Links to other web sites do not constitute an endorsement or referral. This information is to be used for educational and informational purposes only. Medical information on the Chicago Center for Jewish Genetic Disorders’ Website, if any, does not represent advice regarding medical diagnosis or treatment, referrals to health care professionals, endorsements of health care products or any other recommendations. For medical information, please consult your doctor. Partial Update 10/2002.
United States Senators
Honorable Richard J. Durbin (D)
dick@durbin.senate.gov
http://durbin.senate.gov
Honorable Peter G. Fitzgerald (R)
Governor
Honorable Rod Blagojevich
State Capitol, Room 207
Springfield, IL 62706
(217) 782-0244 (V/TTY)
Email: governor@state.il.us
www.state.il.us/gov
State Department of Education: Special Education
Dr. Anthony Sims, Manager
Department of Specialized Support Programs
Illinois State Board of Education
100 North First Street, N-243
Springfield, IL 62777-0001
(217) 782-5589
www.isbe.net
Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
Janet D. Gully, Bureau Chief
Bureau of Early Intervention
Department of Human Services
PO Box 19429
Springfield, IL 62794-9429
(217) 782-1981; (800) 323-4769 (in IL only)
Email: DHSVR50@dhs.state.il.us
www.state.il.us/agency/dhs/earlyint/earlyint.html
Programs for Children with Disabilities: Ages 3 through 5
Kay Henderson, Division Administrator
Division of Early Childhood Education
Illinois State Board of Education
100 North First Street, C-428
Springfield, IL 62777-0001
(217) 524-4835
Email: hhenders@isbe.net
www.isbe.net/earlychi
Vocational Rehabilitation Program
Charlie Martin, Associate Director
Office of Rehabilitation Services
Department of Human Services
100 South Grand Avenue, East
Springfield, IL 62762
(217) 557-7084 (V); (217) 524-7551 (TTY)
Email: ilvr@rehabnetwork.org
www.dhs.state.il.us/ors/vr/
State Advocacy Commissions for Disabled Adults
Illinois Guardianship & Advocacy Commission
Office of State Guardian
PO Box 7009
Hines, IL 60141-7009
(866) 274-8023
http://gac.state.il.us/
Office of State Coordinator of Vocational Education for Students with Disabilities
Sharon Full, Special Populations Coordinator
Illinois State Board of Education
100 North First Street, C-418
Springfield, IL 62777-0001
(217) 782-0738
Email: sfull@isbe.net
www.isbe.state.il.us
State Mental Health Agency
Leigh Steiner, PhD, Associate Director
Office of Mental Health
Department of Human Services
100 South Grand Avenue, East, Harris II, 2nd Floor
Springfield, IL 62762
(217) 782-3731
Email: dhsmhyb@dhs.state.il.us
State Mental Health Representative for Children and Youth
Leigh Steiner, PhD, Associate Director
Office of Mental Health
Department of Human Services
100 South Grand Avenue, East, Harris II, 2nd Floor
Springfield, IL 62762
(217) 782-3731
Email: dhsmhyb@dhs.state.il.us
Division of Mental Health and Developmental Disability Services
Melissa Wright, Associate Director
Office of Developmental Disabilities
Department of Human Services
100 South Grand Avenue, East, 2nd Floor
Springfield, IL 62762
(217) 782-2442
www.dhs.state.il.us/mhdd/
State Developmental Disabilities Planning Council
Sheila T. Romano, Executive Director
Illinois Council on Developmental Disabilities
830 South Spring Street
Springfield, IL 62704
(217) 782-9696 (V/TTY)
www.state.il.us/agency/ipcdd/
Illinois Planning Council on Developmental Disabilities
100 West Randolph Street
Chicago, IL 60601
(312) 814-2080
Fax: (312) 814-7141
Mayor’s Office for People with Disabilities (Chicago)
Contact: Kathy Nelson
City Hall
121 North LaSalle Street
Room 1104
Chicago, IL 60602
(312) 744-7209
Fax: (312) 744-3314
Client Assistance Program
Cynthia Grothaus, Manager
Illinois Client Assistance Program
100 North First Street, 1st Floor, West
Springfield, IL 62702-5197
(217) 782-5374 (V/TTY)
Programs for Children with Special Health Care Needs
Charles N. Onufer, MD, Director
Division of Specialized Care for Children
University of Illinois at Chicago:
1919 W. Taylor St. (m/c 618)
8th Floor, Room 800
Chicago, IL 60612-3772
(312) 996-6380
Fax: (312) 413-0367 DSCC Central Office:
PO Box 19481
2815 West Washington, Suite 300
Springfield, IL 62794-9481
(217) 793-2340 Email: cnonufer@uic.edu
www.uic.edu/hsc/dscc/
Programs for Children and Youth who are Deaf or Hard of Hearing
Ellen Roth, State Coordinator
Division of Services for Persons Who are Deaf or Hard of Hearing
Office of Rehabilitation Services
100 West Randolph Street, Suite 8-100
Chicago, IL 60601
(312) 814-2939; (312) 814-3040 (TTY)
Email: dhsdbh06@dhs.state.il.us
State Education Agency Rural Representative
Department of Rural Education
Illinois State Board of Education
123 South Tenth Street, Suite 200
Mt. Vernon, IL 62864
(618) 244-8383
www.isbe.state.il.us
Regional ADA Technical Assistance Agency
Robin Jones, Project Director
Great Lakes Disability and Business Technical Assistance Center
University of Illinois at Chicago
Institute on Disability and Human Development
1640 West Roosevelt Road (MC/626)
Chicago, IL 60608-6902
(312) 413-1407 (V/TTY); (800) 949-4232 (V/TTY)
Email: gldbtac@uic.edu
www.adagreatlakes.org
University Centers for Excellence in Developmental Disabilities
(formerly University Affiliated Programs)
Glen T. Fujiura, Director
Institute on Disability and Human Development
Department of Disability and Human Development
University of Illinois at Chicago
1640 West Roosevelt Road
Chicago, IL 60608
(312) 413-1647 (V); (312) 413-0453 (TTY)
Email: fujiura@uic.edu
Technology-Related Assistance
Wilhelmina Gunther, Executive Director
Illinois Assistive Technology Project
1 West Old State Capitol Plaza, Suite 100
Springfield, IL 62701
(217) 522-7985(V/TTY)
(800) 852-5110 (V/TTY, in IL only)
Email: wgunther@iltech.org
www.iltech.org
State Mediation System
Sherry Colegrove, Coordinator
Illinois State Board of Education
Center for Special Education
100 North First Street
Springfield, IL 62777
(217) 782-5589
Email: scolegro@isbe.net
www.isbe.net
Disabled Persons Advocacy Division
Office of the Illinois Attorney General
State of Illinois Building
100 West Randolph Street, 13th floor
Chicago, IL 60601
(312) 814-3399
Mental Retardation/Developmental Disabilities
Tony Paulauski, Executive Director
The Arc of Illinois
1820 Ridge Road, Suite 300
Homewood, IL 60430-1739
(708) 206-1930
Email: tony@thearcofil.org
www.thearcofil.org
Speech And Hearing
Cynthia Keillor, Executive Director
Illinois Speech-Language-Hearing Association
230 East Ohio Street, Suite 400
Chicago, IL 60611-3265
(312) 644-0828, ext. 2210
Email: ckeillor@bostrom.com
www.ishail.org
Visual Impairments
Jay Stiteley, Director
American Foundation for the Blind – Midwest
401 North Michigan Avenue, Suite 350
Chicago, IL 60611
(312) 396-4420
Email: chicago@afb.net
www.afb.org
Parent Training and Information Center (PTI)
Charlotte Des Jardins, Director
Family Resource Center on Disabilities
20 East Jackson Boulevard, Room 300
Chicago, IL 60604
(312) 939-3513; (312) 939-3519 (TTY)
(800) 952-4199 (In IL)
Email: frcdptiil@ameritech.net
www.frcd.org
Donald Moore, Executive Director
Designs for Change
29 East Madison, Suite 950
Chicago, IL 60602-4404
(312) 236-7252; (312) 236-7944 (TTY)
(800) 851-8728
Email: info@designsforchange.org
www.designsforchange.org
Family Matters (ARC Community Support System)
Debbie Einhorn
2502 South Veterans Drive
Effingham, IL 62401
(217) 347-0880
(217) 347-5119
deinhorn@arc-css.org
Parent-To-Parent
Charlotte Des Jardins, Executive Director
Family Resource Center on Disabilities
20 East Jackson Boulevard, Suite 300
Chicago, IL 60604
(312) 939-3513; (800) 952-4199 (in IL)
Email: frcdptiil@ameritech.net
www.frcd.org
Charlotte Cronin, Executive Director
Family Support Network of Illinois
5739 West Martindale Lane
Peoria, IL 61615-9669
(309) 693-8981
Email: fsn@familysupportnetwork.org
www.familysupportnetwork.org/
Parent Teacher Association (PTA)
Sarah Williamson, President
Illinois Congress of Parents and Teachers
901 South Spring Street
Springfield, IL 62704-2790
(217) 528-9617; (800) 877-9617
Email: il_office@pta.org
Pathways Awarness Foundation
123 North Wacker Drive
Chicago, IL 60606
(800) 955-2445; (800) 326-8154 (TTY)
Email: friends@pathwaysawareness.org
www.pathwaysawareness.org
Jo Holzer, Executive Director
Council for Disability Rights
205 West Randolph, Suite 1650
Chicago, IL 60606-1820
(312) 444-9484; (312) 444-1967 (TTY)
Email: cdrights@interaccess.com
www.disabilityrights.org
Amy J. Serpe, President
VSA Arts of Chicago
Merchandise Mart, Suite 493
200 World Trade Center Chicago
Chicago, IL 60654
(312) 527-2620; (800) 526-0844 (TTY)
This page last updated on January 10, 2003.
Supported by a grant from
the Michael Reese Health Trust
© 2003 Chicago Center for Jewish Genetic Disorders
